DURHAM COLLEGE
Research project empowers parents with cognitive challenges

Durham College's (DC) Social Impact Hub is at the forefront of a groundbreaking community-engaged research project designed to identify gaps and determine how to improve support for parents with cognitive challenges.

Research shows that while many such parents are able to hold jobs and live independently with minimal support, the average global rate of custody removal for those that become parents is significantly higher than any other group of children.

"Parents with cognitive challenges should not have to prove themselves capable of parenting and yet, they do," explained Amanda Cappon, DC faculty member who led the project with DC faculty member Kay Corbier. "They are held to a level of scrutiny higher than any other parent, which was the motivation for this project - to challenge the stigma of being a parent with cognitive challenges and mitigate trauma to families."

The project, funded by the Social Sciences and Humanities Research Council of Canada (SSHRC) through the College and Community Social Innovation Fund (CCSIF), brought together a wide network of collaborators, including the Starfish Parent Support Program, the Regional Municipality of Durham, Durham Children's Aid Society, Lake Ridge Community Support Services, and Brock University. Students from DC were hired as research assistants, gaining hands-on experience in community collaboration and applied research while contributing to positive social impact.

Raising Resilient Families: Empowering Parents with Cognitive Challenges highlights the importance of early intervention, community collaboration, and support systems rooted in respect and dignity, influencing lasting change that promotes the well-being of families and prevents unnecessary disruption.

At the heart of the project was a deep commitment to amplify the voices of parents with cognitive challenges, ensuring their lived experiences shaped the project at every step. The multi-phase project included:

• Interviews with parents and service providers to identify barriers, strengths and gaps in support.
• Training to over 30 staff from local service providers in the evidence-based Step-by-Step Parenting Program, developed by team member Dr. Maurice Feldman, to build awareness of the unique needs and challenges of parents with cognitive challenges and enhance their skillset for supporting them.
• Collaborative sessions with parents and service providers to design supports, such as a post-birth plan and parent support group model.

The Raising Resilient Families Final Report identifies the need for systemic change enhanced supports for parents, tailored training for service providers, and policies that reduce bias and promote equity. The project team will actively share the knowledge gained from this project over the next few months, aiming to spark further conversations and actions that will positively impact practice and the lives of families in our communities.

"The role of parents is critical, as they have the ability to quite literally shape future generations," said Deanna Cooper, Research Associate and DC Alumni. "As individuals with cognitive challenges embark on their journey of becoming parents, we're committed to improving the individualized support they may need to foster a safe and healthy environment for their children."